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Crohn's & Colitis Foundation

CharityWatch report issued
May 2019

Top-Rated Charity
A
CharityWatch Grade
Our independent grade based
on a number of factors.
 
81%
Program Percentage
Amount spent on programs
relative to overhead.
 
$7
Cost to Raise $100
Amount spent to raise
$100 of contributions.

Contact Information

Crohn's & Colitis Foundation
733 Third Ave.
Suite 510
New York, NY 10017

Other Names

Crohn's & Colitis Foundation of America

Tax Status

501(c)3

Stated Mission

To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.

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Data based on Fiscal Year Ended 12/31/2017

Program Percentage: 81%

The percentage of Crohn's & Colitis Foundation's cash budget it spends on programs relative to overhead (fundraising, management, and general expenses).

$76,000,000

Calculated Total Expenses

(rounded)

 

Cost to Raise $100: $7

How many dollars Crohn's & Colitis Foundation spends on fundraising to raise each $100 of contributions.

$71,000,000

Calculated Total Contributions

(rounded)

Government Funding

0% to 24%

Percentage of cash revenue
coming from government sources

 

Financial Documents

Entity Document Type Tax ID
Crohn's & Colitis Foundation IRS Form 990 13-6193105
Crohn's & Colitis Foundation Audited Financial Statements 13-6193105
Entity: Crohn's & Colitis Foundation
Document Type: IRS Form 990
Tax ID: 13-6193105
Entity: Crohn's & Colitis Foundation
Document Type: Audited Financial Statements
Tax ID: 13-6193105

Governance & Transparency

CharityWatch evaluates certain criteria related to a charity's Governance and Transparency. Donors may want to consider a charity's willingness to be open and transparent with CharityWatch to be a good litmus test for determining its commitment to public accountability.
This charity is Top-Rated
What does it mean to be Top-Rated?
 
Crohn's & Colitis Foundation
meets governance benchmarks.
 
Crohn's & Colitis Foundation
meets transparency benchmarks.
Transparency
Provides Financial Information
Audit Accessibility
Governance: Policies
Reports regularly & consistently monitoring & enforcing compliance with a written Conflict of Interest Policy
Reports required, annual disclosure by officers, directors, and key staff of interests that could give rise to conflicts
Reports having a written Whistleblower Policy
Reports having a written Document Retention and Destruction Policy
Governance: Financials
Reports providing copy of tax form to all board members prior to filing it with IRS
Reports that financial statements were audited by an independent accountant
Governance: Board of Directors
Reports at least 5 voting board members
51% or more of voting board members reported as independent
Reports documenting minutes of board and board committee meetings
Privacy Policy
Privacy Policy

  Name Title Compensation
1 Michael Osso President/CEO $487,576
2 Caren Heller Chief Scientific Officer $357,532
3 Robert Territo CFO/COO $273,519
1
Name: Michael Osso
Title: President/CEO
Compensation: $487,576
2
Name: Caren Heller
Title: Chief Scientific Officer
Compensation: $357,532
3
Name: Robert Territo
Title: CFO/COO
Compensation: $273,519

CharityWatch Analysts perform an in-depth analysis of charities' audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. Below are select notes that CharityWatch believes may be of interest to donors.
CharityWatch's rating of Crohn's & Colitis Foundation includes the financial activities of the legal entities included in its audited financial statements for the fiscal year-ended 12/31/2017.

According to the Crohn's & Colitis Foundation 2017 audit (Note 1), the audited financial statements include the financial activities of the Foundation's national office (headquartered in New York City), the 38 chapters across the U.S., and the volunteer affiliates.
According to the Crohn's & Colitis Foundation audit of December 31, 2017 (Note 1, Contributed Services and Airtime), the Foundation received in-kind donated services and contributions on which it placed a total value of $6,950,439. Of this amount, $4,342,717 consisted of contributed airtime for donated public service announcements.

[Note: CharityWatch generally excludes the value of in-kind (non-cash) donations of goods and services from its calculations of Program % and Cost to Raise $100. More information on how grades are calculated and the treatment of in-kind donations can be found on the Our Process page.]
According to the Crohn's & Colitis Foundation audit of December 31, 2017 (Note 2, Research Grants):

"...[T]he Foundation has unpaid conditional grants outstanding of $18,387,177...at December 31, 2017...which are payable upon satisfaction of the underlying conditions by the grantees and, therefore, such amounts have not been recorded in the accompanying [audited] financial statements."
According to the Crohn's & Colitis Foundation 2017 tax filing re: Political Campaign and Lobbying Activities (IRS Form 990, Schedule C, Part IV):

"In 2017, the Crohn's & Colitis Foundation ('the Foundation') employed the services of two different professional consultants to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. The first consultant, Health and Medicine Counsel of Washington is a healthcare advocacy group that may lobby on behalf of healthcare organizations; however, it is not paid to directly undertake any lobbying activities on behalf of the Foundation. Total amount paid in 2017 was $74,619. The Foundation holds a 'Day on the Hill' event every year, in which patients suffering with Crohn's Disease volunteer to travel to Washington D.C. to discuss proposed healthcare bills with legislators. The 'Day on the Hill' event was conducted during the calendar year 2017, for which expenses incurred were approximately $79,447.

"The second consultant, Faeger Baker Daniels, LLP, is a law firm specializing in U.S. legislation and regulations. The Foundation employed their services in November of 2017.

"The Foundation engages in state-based advocacy campaigns ensuring the needs of patients are being addressed through legislation that targets the cost of health care and access and ensures access to care and treatment with the ultimate goal of improving the quality of life for our patients. Total payments made in calendar year 2017 were $121,416..."
According to the Crohn's & Colitis Foundation 2017 tax filing, the Foundation reports re: Compensation, Supplemental Information (IRS Form 990, Schedule J, Part III):

Regarding nonfixed payments to officers, directors, trustees, key employees and highest compensated employees (Schedule J, Part I, Line 7):

"The President/CEO's bonus and incentive compensation is predicated off of a set of objectives that are developed and updated each year. These objectives include raising revenues, management of expenses, development of regions and related performance, building of infrastructure and maximization of mission expenditures. Results are evaluated by the compensation and benefits committee and the incentive is ultimately determined based on ratings of performance of these objectives.

"The President/CEO's bonus, as reported in Schedule J, Part II, Column (B)(ii) represents bonuses from two distinct calendar years: a bonus accrued in 2016, but paid out in 2017 and his 2017 calendar year bonus.

"The Foundation acknowledges all of its other employees through annual lump-sum incentive awards based on meeting individual, departmental, and overall Foundation performance goals."


The Foundation reports "Bonus & incentive compensation" in the amount of $74,500 paid to Michael Osso, President/CEO, with total compensation of $487,576 in 2017. Ten additional individuals are reported to have received "Bonus & incentive compensation" in amounts that range from $13,074 to $2,500, with total compensation that ranges from $357,532 to $169,629 in 2017 (IRS Form 990, Schedule J, Part II).

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