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National Hemophilia Foundation (National Office)

CharityWatch report issued
March 2019

Top-Rated Charity
A-
CharityWatch Grade
Our independent grade based
on a number of factors.
 
76%
Program Percentage
Amount spent on programs
relative to overhead.
 
$7
Cost to Raise $100
Amount spent to raise
$100 of contributions.

Contact Information

National Hemophilia Foundation (National Office)
7 Penn Plaza
Suite 1204
New York, NY 10001-3923

Other Names

None

Tax Status

501(c)3

Stated Mission

Dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

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Data based on Fiscal Year Ended 12/31/2017

Program Percentage: 76%

The percentage of National Hemophilia Foundation (National Office)'s cash budget it spends on programs relative to overhead (fundraising, management, and general expenses).

$20,000,000

Calculated Total Expenses

(rounded)

 

Cost to Raise $100: $7

How many dollars National Hemophilia Foundation (National Office) spends on fundraising to raise each $100 of contributions.

$15,000,000

Calculated Total Contributions

(rounded)

Government Funding

0% to 24%

Percentage of cash revenue
coming from government sources

 

Financial Documents

Entity Document Type Tax ID
National Hemophilia Foundation Audited Financial Statements 13-5641857
National Hemophilia Foundation IRS Form 990 13-5641857
Entity: National Hemophilia Foundation
Document Type: Audited Financial Statements
Tax ID: 13-5641857
Entity: National Hemophilia Foundation
Document Type: IRS Form 990
Tax ID: 13-5641857

Governance & Transparency

CharityWatch evaluates certain criteria related to a charity's Governance and Transparency. Donors may want to consider a charity's willingness to be open and transparent with CharityWatch to be a good litmus test for determining its commitment to public accountability.
This charity is Top-Rated
What does it mean to be Top-Rated?
 
National Hemophilia Foundation (National Office)
meets governance benchmarks.
 
National Hemophilia Foundation (National Office)
meets transparency benchmarks.
Transparency
Provides Financial Information
Audit Accessibility
Governance: Policies
Reports regularly & consistently monitoring & enforcing compliance with a written Conflict of Interest Policy
Reports required, annual disclosure by officers, directors, and key staff of interests that could give rise to conflicts
Reports having a written Whistleblower Policy
Reports having a written Document Retention and Destruction Policy
Governance: Financials
Reports providing copy of tax form to all board members prior to filing it with IRS
Reports that financial statements were audited by an independent accountant
Governance: Board of Directors
Reports at least 5 voting board members
51% or more of voting board members reported as independent
Reports documenting minutes of board and board committee meetings
Privacy Policy
Privacy Policy

  Name Title Compensation
1 Val Bias CEO $413,482
2 Jordana Zeger COO $278,142
3 Michelle Rice Senior VP, Public Policy & Stakeholder Relations $220,302
1
Name: Val Bias
Title: CEO
Compensation: $413,482
2
Name: Jordana Zeger
Title: COO
Compensation: $278,142
3
Name: Michelle Rice
Title: Senior VP, Public Policy & Stakeholder Relations
Compensation: $220,302

CharityWatch Analysts perform an in-depth analysis of charities' audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. Below are select notes that CharityWatch believes may be of interest to donors.
According to the National Hemophilia Foundation (NHF) audit of December 31, 2017 (Note 1):



"The Foundation and other independent organizations ('member chapters') actively collaborate in furthering the Foundation's mission throughout the United States. These [audited] financial statements represent only the financial position and activities of the National Hemophilia Foundation and do not include the accounts of the 'member chapters'. On June 23, 2011, five chapters merged with NHF. On February 24, 2014, a sixth chapter and on January 27, 2016 a seventh chapter was created by the Foundation; consequently, the two newly created chapters along with those of the five previously merged chapters are included in the financial statements of NHF. All other member chapters continue to operate independently of NHF and thus, are not included in the financial statements of NHF."





The five chapters that merged with NHF in 2011 are the Central Ohio, Idaho, Nevada, Colorado, and Nebraska chapters. The sixth and seventh chapters that were created in 2014 and 2016 are the West Virginia and Hawaii chapter, respectively. Given that the financial activities of these seven chapters are included in NHF's audited financial statements, they also are included in CharityWatch's rating of National Hemophilia Foundation (National Office). Our rating does not include the other, independently operated chapters of NHF.
According to the National Hemophilia Foundation audit of December 31, 2017 (Note 1):



"... For the years ended December 31, 2017 and 2016, approximately 37% of the Foundation's total support and revenue were provided by two pharmaceutical companies..."
According to the National Hemophilia Foundation (NHF) 2017 tax filing, NHF reports re: Compensation, Supplemental Information (IRS Form 990, Schedule J, Part III):



Regarding nonfixed payments to officers, directors, trustees, key employees and highest compensated employees (Schedule J, Part I, Line 7):



"The CEO shall be eligible to receive an annual bonus of up to 10% of base salary based on performance in a contract year. The form and amount of any performance bonus shall be within the board's discretion. The bonus determination will be made pursuant to a formalized review process conducted by the board of directors."



[NHF reports $0 under "Bonus & incentive compensation" for the CEO in 2017 (IRS Form 990, Schedule J, Part II).]

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