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Top Rated

Lupus Research Alliance

CharityWatch report issued
January 2022

Top-Rated Charity
A
CharityWatch Grade
Our independent grade based
on a number of factors.
 
85%
Program Percentage
Amount spent on programs
relative to overhead.
 
$7
Cost to Raise $100
Amount spent to raise
$100 of contributions.

Contact Information

Lupus Research Alliance
270 Madison Avenue
Suite 300
New York, NY 10016

Other Names

Alliance for Lupus Research
Lupus Research Institute
S.L.E. Lupus Foundation

Tax Status

501(c)3

Stated Mission

To transform the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.

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Data based on Fiscal Year Ended 12/31/2020

Program Percentage: 85%

The percentage of Lupus Research Alliance's cash budget it spends on programs relative to overhead (fundraising, management, and general expenses).

$34,000,000

Calculated Total Expenses

(rounded)

 

Cost to Raise $100: $7

How many dollars Lupus Research Alliance spends on fundraising to raise each $100 of contributions.

$42,000,000

Calculated Total Contributions

(rounded)

Government Funding

0% to 24%

Percentage of cash revenue
coming from government sources

 

Financial Documents

Entity Document Type Tax ID
Lupus Research Alliance IRS Form 990 58-2492929
Lupus Research Alliance Audited Consolidated Financial Statements Multiple
Entity: Lupus Research Alliance
Document Type: IRS Form 990
Tax ID: 58-2492929
Entity: Lupus Research Alliance
Document Type: Audited Consolidated Financial Statements
Tax ID: Multiple

Governance & Transparency

CharityWatch evaluates certain criteria related to a charity's Governance and Transparency. Donors may want to consider a charity's willingness to be open and transparent with CharityWatch to be a good litmus test for determining its commitment to public accountability.
This charity is Top-Rated
What does it mean to be Top-Rated?
 
Lupus Research Alliance
meets governance benchmarks.
 
Lupus Research Alliance
meets transparency benchmarks.
Transparency
Provides Financial Information
Audit Accessibility
Governance: Policies
Reports regularly & consistently monitoring & enforcing compliance with a written Conflict of Interest Policy
Reports required, annual disclosure by officers, directors, and key staff of interests that could give rise to conflicts
Reports having a written Whistleblower Policy
Reports having a written Document Retention and Destruction Policy
Governance: Financials
Reports providing copy of tax form to all board members prior to filing it with IRS
Reports that financial statements were audited by an independent accountant
Governance: Board of Directors
Reports at least 5 voting board members
51% or more of voting board members reported as independent
Reports documenting minutes of board and board committee meetings
Privacy Policy
Privacy Policy

  Name Title Compensation
1 Kenneth M. Farber President/CEO $503,095
2 Teodora Staeva Chief Scientific Officer $355,838
3 Albert Roy Executive Director, Lupus Clinical Investigators Network $337,000
1
Name: Kenneth M. Farber
Title: President/CEO
Compensation: $503,095
2
Name: Teodora Staeva
Title: Chief Scientific Officer
Compensation: $355,838
3
Name: Albert Roy
Title: Executive Director, Lupus Clinical Investigators Network
Compensation: $337,000

CharityWatch Analysts perform an in-depth analysis of charities' audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. Below are select notes that CharityWatch believes may be of interest to donors.

According to the Lupus Research Alliance consolidated audit of December 31, 2020 (Note 10, Loan Payable):

"In April 2020, the Alliance received a $698,800 Paycheck Protection Program (PPP) loan with an interest rate of 1.00% and a maturity of 2 years. The loan and any accrued interest can be forgiven in its entirety if the loan proceeds are applied towards applicable payroll and occupancy costs, as defined by the Coronavirus Aid, Relief and Economic Security Act. The Alliance was informed that the loan was forgiven on June 9, 2021."

According to the Lupus Research Alliance consolidated audit of December 31, 2020 (Note 1, Organization):

"During the year ended December 31, 2020, the Alliance received approximately 72% of its contributions from one foundation and one trust and during the year ended December 31, 2019, approximately 34% of its contributions from one corporation and one trust." 

According to the Lupus Research Alliance consolidated audit of December 31, 2020 (Note 6, Investments), the Alliance reports having total investments with a fair value of $81,150,155 and $62,118,380 at December 31, 2020 and 2019, respectively. "At December 31, 2020 and 2019, approximately 47% and 42%, respectively, of total investments was invested in one Fortune 500 company."

According to the Lupus Research Alliance consolidated audit of December 31, 2020 (Note 16, Risks and Uncertainties):

"In March 2020, the United States declared the global pandemic novel coronavirus COVID-19 outbreak a national emergency. As a result, the Alliance has suspended some of its program activities at the direction of state and local governmental authorities. Management continues to evaluate the potential impact that the resulting economic uncertainties may have on the Alliance and believes that its current financial assets are sufficient to support the Alliance's operations on an ongoing basis."


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