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Top Rated

Lupus Research Alliance

Top-Rated Charity
A
CharityWatch Grade
Our independent grade based
on a number of factors.
 
80%
Program Percentage
Amount spent on programs
relative to overhead.
 
$14
Cost to Raise $100
Amount spent to raise
$100 of contributions.

Contact Information

Lupus Research Alliance
275 Madison Avenue
10th Floor
New York, NY 10016

Other Names

Alliance for Lupus Research
Lupus Research Institute
S.L.E. Lupus Foundation

Tax Status

501(c)3

Stated Mission

To transform the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.

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Data based on Fiscal Year Ended 12/31/2017

Program Percentage: 80%

The percentage of Lupus Research Alliance's cash budget it spends on programs relative to overhead (fundraising, management, and general expenses).

$28,000,000

Calculated Total Expenses

(rounded)

 

Cost to Raise $100: $14

How many dollars Lupus Research Alliance spends on fundraising to raise each $100 of contributions.

$24,000,000

Calculated Total Contributions

(rounded)

Joint Costs

Lupus Research Alliance's rating was adjusted for Joint Costs. If you are a donor who considers direct mail, telemarketing, and other Joint Cost solicitations to be true charitable programs, the below efficiency ratios, which were not adjusted for joint costs, may better reflect your goals.

Program % Cost to Raise $100
81% $14
Accounting rules allow charities to report some telemarketing, direct mail, and other solicitation costs as Program expenses. CharityWatch believes that most donors do not consider a charity's solicitation activities to be the Programs they are intending to support with their donations. We therefore adjust such expenses out of a charity's reported Program expense and add it to Fundraising expense prior to calculating its rating.

Government Funding

0% to 24%

Percentage of cash revenue
coming from government sources

 

Financial Documents

Entity Document Type Tax ID
Lupus Research Alliance IRS Form 990 58-2492929
Lupus Research Alliance Audited Financial Statements 58-2492929
Entity: Lupus Research Alliance
Document Type: IRS Form 990
Tax ID: 58-2492929
Entity: Lupus Research Alliance
Document Type: Audited Financial Statements
Tax ID: 58-2492929

Governance & Transparency

CharityWatch evaluates certain criteria related to a charity's Governance and Transparency. Donors may want to consider a charity's willingness to be open and transparent with CharityWatch to be a good litmus test for determining its commitment to public accountability.
This charity is Top-Rated
What does it mean to be Top-Rated?
 
Lupus Research Alliance
meets governance benchmarks.
 
Lupus Research Alliance
meets transparency benchmarks.
Transparency
Provides Financial Information
Audit Accessibility
Governance: Policies
Reports regularly & consistently monitoring & enforcing compliance with a written Conflict of Interest Policy
Reports required, annual disclosure by officers, directors, and key staff of interests that could give rise to conflicts
Reports having a written Whistleblower Policy
Reports having a written Document Retention and Destruction Policy
Governance: Financials
Reports providing copy of tax form to all board members prior to filing it with IRS
Reports that financial statements were audited by an independent accountant
Governance: Board of Directors
Reports at least 5 voting board members
51% or more of voting board members reported as independent
Reports documenting minutes of board and board committee meetings
Privacy Policy
Privacy Policy

  Name Title Compensation
1 Kenneth M. Farber Co-CEO/Co-President $415,380
2 Albert Roy Executive Director, LuCIN $250,871
3 Andrea O'Neill Executive Director $227,378
1
Name: Kenneth M. Farber
Title: Co-CEO/Co-President
Compensation: $415,380
2
Name: Albert Roy
Title: Executive Director, LuCIN
Compensation: $250,871
3
Name: Andrea O'Neill
Title: Executive Director
Compensation: $227,378

CharityWatch Analysts perform an in-depth analysis of charities' audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. Below are select notes that CharityWatch believes may be of interest to donors.
According to the Lupus Research Alliance audit of December 31, 2017 (Note 1, Organization and Merger):

"On July 1, 2016, Lupus Research Institute, Inc. ('LRI') and S.L.E. Lupus Foundation, Inc. (the 'Foundation'), both not-for-profit corporations formed to encourage and support research to discover the causes and cure of Lupus Erythematosus, were merged into the Alliance. At that time, the Organization's name was also changed to Lupus Research Alliance, Inc. The merger allows the Alliance [to] expand its programs. The Alliance paid no consideration in the merger."

[...]

"At the date of the merger, LRI had $4,000,000 of conditional grants payable. The conditions were satisfied prior to December 31, 2016 and the grants were recognized as expense..."

[Note: Click on the "Articles & Alerts" Tab (above) for a link to the July 2016 press release concerning the merger.]


Also according to the Lupus Research Alliance audit of December 31, 2017 (Note 13, Subsequent Event):

"On January 5, 2018, the Alliance formed Lupus Therapeutics, LLC (the 'LLC'), a single member limited liability company, wholly owned by the Alliance. The LLC was formed to conduct clinical trial studies."
According to the Lupus Research Alliance audit of December 31, 2017 (Note 1):

"During the years ended December 31, 2017 and 2016, the Alliance received 55% and 31%, respectively, of its contributions from one foundation and one trust."
According to the Lupus Research Alliance audit of December 31, 2017 (Note 7b, Promises to Give):

"During 2016, the Alliance entered into a collaboration agreement (the 'Agreement') with Centers for Therapeutic Innovation ('CTI') to identify and jointly fund up to three research programs over a two-year period. CTI will contribute up to approximately $610,000 per year over two years to fund this program. The second year contribution of $610,000 is contingent on certain conditions as defined by the Agreement and has not been recorded in the accompanying [audited] financial statements."

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