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Top Rated

Lupus Research Alliance

CharityWatch rating issued
November 2024

Top-Rated Charity
A
CharityWatch Rating
Our independent rating based
on a number of factors.
 
81%
Program Percentage
Amount spent on programs
relative to overhead.
 
$9
Cost to Raise $100
Amount spent to raise
$100 of contributions.

Contact Information

Lupus Research Alliance
270 Madison Avenue
Suite 300
New York, NY 10016

Other Names

Alliance for Lupus Research
Lupus Research Institute
S.L.E. Lupus Foundation

Tax Status

501(c)3

Stated Mission

To transform the lives of people affected with lupus by using the power of science to drive new treatments, prevent disease progression, and find a cure.

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Data based on Fiscal Year Ended 12/31/2023

Program Percentage: 81%

The percentage of Lupus Research Alliance's cash budget it spends on programs relative to overhead (fundraising, management, and general expenses).

$35,000,000

Calculated Total Expenses

(rounded)

 

Cost to Raise $100: $9

How many dollars Lupus Research Alliance spends on fundraising to raise each $100 of contributions.

$41,000,000

Calculated Total Contributions

(rounded)

Government Funding

0% to 24%

Percentage of cash revenue
coming from government sources

 

Financial Documents

Entity Document Type Tax ID
Lupus Research Alliance Consolidated Audited Financial Statements Multiple
Lupus Research Alliance IRS Form 990 58-2492929
Entity: Lupus Research Alliance
Document Type: Consolidated Audited Financial Statements
Tax ID: Multiple
Entity: Lupus Research Alliance
Document Type: IRS Form 990
Tax ID: 58-2492929

Governance & Transparency

CharityWatch evaluates certain criteria related to a charity's Governance and Transparency. Donors may want to consider a charity's willingness to be open and transparent with CharityWatch to be a good litmus test for determining its commitment to public accountability.
This charity is Top-Rated
What does it mean to be Top-Rated?
 
Lupus Research Alliance
meets governance benchmarks.
 
Lupus Research Alliance
meets transparency benchmarks.
Transparency
Provides Financial Information
Audit Accessibility
Governance: Policies
Reports regularly & consistently monitoring & enforcing compliance with a written Conflict of Interest Policy
Reports required, annual disclosure by officers, directors, and key staff of interests that could give rise to conflicts
Reports having a written Whistleblower Policy
Reports having a written Document Retention and Destruction Policy
Governance: Financials
Reports providing copy of tax form to all board members prior to filing it with IRS
Reports that financial statements were audited by an independent accountant
Governance: Board of Directors
Reports at least 5 voting board members
51% or more of voting board members reported as independent
Reports documenting minutes of board and board committee meetings
Privacy Policy
Privacy Policy

  Name Title Compensation
1 Albert Roy CEO / President $522,768
2 Teodora Staeva VP / Chief Scientific Officer $408,297
3 Kenneth M. Faber Past CEO / President $400,000
1
Name: Albert Roy
Title: CEO / President
Compensation: $522,768
2
Name: Teodora Staeva
Title: VP / Chief Scientific Officer
Compensation: $408,297
3
Name: Kenneth M. Faber
Title: Past CEO / President
Compensation: $400,000

CharityWatch Analysts perform an in-depth analysis of charities' audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. Below are select notes that CharityWatch believes may be of interest to donors.

According to the Lupus Research Alliance consolidated audit of December 31, 2023 (Note 1, Organization):

"...During the year ended December 31, 2023, the Alliance received approximately 74% of its contributions from one foundation..."

According to the Lupus Research Alliance consolidated audit of December 31, 2023 (Note 6, Investments), the Alliance reports having total investments with a fair value of $81,768,889 and $86,853,912 at December 31, 2023 and 2022, respectively. "...At December 31, 2023 and 2022, approximately 46% and 49%, respectively, of total investments was invested in one Fortune 500 company..."

According to the Lupus Research Alliance consolidated audit of December 31, 2023 (Note 13, Commitment):

"As of December 31, 2023, the Alliance has commitments of approximately $14,505,000 for consulting services through October 31, 2031. Approximately $12,775,000 of the total commitments are related to the Alliance's Lupus Nexus Project."

According to the Lupus Research Alliance consolidated audit of December 31, 2023 (Note 15, Employee Retention Tax Credit):

"The Coronavirus Aid, Relief and Economic Security ('CARES') Act enacted in 2020 allowed eligible employers to claim employee retention tax credits for qualified wages paid after March 12, 2020 and before September 30, 2021. The Alliance qualified for the credit during this period based on partial suspension due to government COVID-related orders and a decrease in gross receipts. The amount of the credit claimed by the Alliance during 2023 and 2022 was $334,880 and $294,339, respectively."

According to the Lupus Research Alliance (LRA) 2023 tax filing, LRA reports re: Compensation, Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (IRS Form 990, Schedule J, Part II):

LRA reports "Bonus & incentive compensation" payments to 9 individuals in 2023, including $70,000 paid to Albert Roy, President & CEO. The reported total compensation in 2023 for Albert Roy is $522,768. The remaining eight individuals received "Bonus & incentive compensation" that ranged from $10,000 to $50,000, with associated reported total compensation in 2023 ranging from $201,002 to $408,297 (IRS Form 990, Schedule J, Part II).

According to the Lupus Research Alliance (LRA) tax filing for the fiscal year ended December 31, 2023, LRA reports re: Supplemental Information to Form 990 or 990-EZ (IRS Form 990, Schedule O):

Regarding family or business relationships among officers, directors, trustees, or key employees (IRS Form 990, Part VI, Section A, Line 2):

"Ira Akselrad and Robert Wood Johnson, IV (past Chairman of the Board), have a business relationship. Richard K. Descherer (Co-Chair) and Jennie Descherer have a family relationship."

[Jennie Descherer is reported to be a Director (IRS Form 990, Part VII, Column A)].


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