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Huntington's Disease Society of America

CharityWatch report issued
April 2022

Top-Rated Charity
CharityWatch Grade
Our independent grade based
on a number of factors.
Program Percentage
Amount spent on programs
relative to overhead.
Cost to Raise $100
Amount spent to raise
$100 of contributions.

Contact Information

Huntington's Disease Society of America
505 Eighth Avenue
Suite 902
New York, NY 10018

Other Names


Tax Status




Stated Mission

A health and welfare organization dedicated to improving the lives of people with Huntington's Disease and their families.

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Data based on Fiscal Year Ended 12/31/2020

Program Percentage: 81%

The percentage of Huntington's Disease Society of America's cash budget it spends on programs relative to overhead (fundraising, management, and general expenses).


Calculated Total Expenses



Cost to Raise $100: $13

How many dollars Huntington's Disease Society of America spends on fundraising to raise each $100 of contributions.


Calculated Total Contributions


Government Funding

0% to 24%

Percentage of cash revenue
coming from government sources


Financial Documents

Entity Document Type Tax ID
Huntington's Disease Society of America IRS Form 990 13-3349872
Huntington's Disease Society of America Group IRS Form 990 90-0658125
Huntington's Disease Society of America Audited Financial Statements multiple
Entity: Huntington's Disease Society of America
Document Type: IRS Form 990
Tax ID: 13-3349872
Entity: Huntington's Disease Society of America Group
Document Type: IRS Form 990
Tax ID: 90-0658125
Entity: Huntington's Disease Society of America
Document Type: Audited Financial Statements
Tax ID: multiple

Governance & Transparency

CharityWatch evaluates certain criteria related to a charity's Governance and Transparency. Donors may want to consider a charity's willingness to be open and transparent with CharityWatch to be a good litmus test for determining its commitment to public accountability.
This charity is Top-Rated
What does it mean to be Top-Rated?
Huntington's Disease Society of America
meets governance benchmarks.
Huntington's Disease Society of America
meets transparency benchmarks.
Provides Financial Information
Audit Accessibility
Governance: Policies
Reports regularly & consistently monitoring & enforcing compliance with a written Conflict of Interest Policy
Reports required, annual disclosure by officers, directors, and key staff of interests that could give rise to conflicts
Reports having a written Whistleblower Policy
Reports having a written Document Retention and Destruction Policy
Governance: Financials
Reports providing copy of tax form to all board members prior to filing it with IRS
Reports that financial statements were audited by an independent accountant
Governance: Board of Directors
Reports at least 5 voting board members
51% or more of voting board members reported as independent
Reports documenting minutes of board and board committee meetings
Privacy Policy
Privacy Policy No Sharing  

  Name Title Compensation
1 Louise Vetter CEO $330,643
2 George Yohrling Senior Director, Mission & Scientific Affairs $247,111
3 Rosemary Coluccio COO $242,882
Name: Louise Vetter
Title: CEO
Compensation: $330,643
Name: George Yohrling
Title: Senior Director, Mission & Scientific Affairs
Compensation: $247,111
Name: Rosemary Coluccio
Title: COO
Compensation: $242,882

CharityWatch Analysts perform an in-depth analysis of charities' audited financial statements and IRS tax filings, and often review other documents such as state filings, annual reports, and fundraising contracts during their evaluations. Below are select notes that CharityWatch believes may be of interest to donors.

CharityWatch's rating of Huntington's Disease Society of America includes the financial activities of the Society's headquarters, based in New York City, and its 35 chapters located throughout the United States, which are included in the Society's audited financial statements for the year ended December 31, 2020.

According to the Huntington's Disease Society of America audit of December 31, 2020 (Note M, Paycheck Protection Program Loan Payable):

"On May 1, 2020, the Society received $634,692 in funds from JP Morgan Chase Bank and these proceeds are reported as a PPP loan payable on the [audited] statements of financial position as of December 31, 2020. Neither principal nor interest is due for a ten-month deferral period from the last day of the Society's covered period, which is October 15, 2021. This loan may be forgiven subject to bank approval in accordance with SBA [Small Business Administration] guidelines. Any outstanding principle of the loan that is not forgiven under the PPP loan program at the end of the ten-month deferral period will convert to a term loan with an interest rate of 0.98% payable in equal installments of principal and interest over the next twenty-four months, beginning February 2021. The loan matures on May 1, 2022. The Society is in the process of applying for forgiveness."

According to the Huntington's Disease Society of America audit of December 31, 2020 (Note A-14, Donated goods and services), the Society received donated goods and services during 2020 on which it placed a total value of $132,439.

[Note: CharityWatch generally excludes the value of in-kind (non-cash) donations of goods and services from its calculations of Program % and Cost to Raise $100. More information on how grades are calculated and the treatment of in-kind donations can be found on the Our Process page.]

According to the Huntington's Disease Society of America audit of December 31, 2020 (Note J-3, Commitments, Contingency, and Other Uncertainty, Litigation):

"The Society is a defendant in a legal action arising from the normal course of operations. Although the final outcome of such actions cannot currently be determined, the Society's management believes that the eventual liability, if any, will be covered by insurance."

According to the Huntington's Disease Society of America audit of December 31, 2020 (Note J-2, Commitments, Contingency, and Other Uncertainty, Other uncertainty):

"The extent of the impact of the COVID-19 outbreak on the Society's programming, operational and financial performance is uncertain and will depend on the continued future developments of the outbreak and external restrictions imposed. The potential impact brought by, and the duration of, the COVID-19 pandemic is difficult to assess or predict and may have an adverse impact on the Society's operations."

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